Anil van der Zee was a professional ballet dancer. He’s been living with severe ME for 16 years. This is what it’s like to live with it. Your life shrinks down to so little. This one precious life, where we want to dance and do science and climb mountains, shrinks down to this.
Tomorrow is International ME Awareness Day. I would ask everyone to spend 20 minutes watching this. 20-min might feel long, but with only 5% of us recovering, it’s a lot less than a lifetime. If we remain invisible, we will remain trapped.
This video is striking in its depiction of the dark reality of ME. Bless him for making it to try to show the world what we are going through.