Thank you so much for this valuable information to help us understand whats happening in our bodies, and to help us communicate most effectively with doctors.
Curious how much LDA has boosted your baseline? Do you think it has the potential to bring someone from moderate to mild? I’m afraid of its side effects however — especially tardive dyskensia
I think in combination with properly treating POTS, LDA made a significant difference for me . I’m still only taking 0.5 mg and will hold there as long as my symptoms allow.
I think, based on many stories shared by individuals, it does have the potential to take someone from one level of disease severity to another.
Not everyone, obviously.
I’m no expert, but it’s important to keep in mind that this drug seems to function in an opposite manner when taken at a low-dose compared to regular psychiatric doses. My understanding with that particular side effect is that it typically occurs at higher doses, and after being on the drug, often with other psychiatric drugs, for a period of time. At those higher doses, it inhibits dopamine receptors. At the low dose for ME, it stimulates the dopamine receptors. This leads me to believe that the high dose side effects are unlikely at the lower doses. I would always speak with a doctor first.
Thank you so much for this valuable information to help us understand whats happening in our bodies, and to help us communicate most effectively with doctors.
Thanks for this awesome post full of relevant resources! This should be an ME primer for everyone.
Thanks for compiling this information. I'm going to save this post!
Thank you for sharing this information, your extensive research, your own experiences. It gives me some hope for my awesomely brave starving girl 🙏🏻
Curious how much LDA has boosted your baseline? Do you think it has the potential to bring someone from moderate to mild? I’m afraid of its side effects however — especially tardive dyskensia
I think in combination with properly treating POTS, LDA made a significant difference for me . I’m still only taking 0.5 mg and will hold there as long as my symptoms allow.
I think, based on many stories shared by individuals, it does have the potential to take someone from one level of disease severity to another.
Not everyone, obviously.
I’m no expert, but it’s important to keep in mind that this drug seems to function in an opposite manner when taken at a low-dose compared to regular psychiatric doses. My understanding with that particular side effect is that it typically occurs at higher doses, and after being on the drug, often with other psychiatric drugs, for a period of time. At those higher doses, it inhibits dopamine receptors. At the low dose for ME, it stimulates the dopamine receptors. This leads me to believe that the high dose side effects are unlikely at the lower doses. I would always speak with a doctor first.
Thank you so much for these excellent thoughts, and will do!
This is very informative thank you. Saves me having to read a lot of papers.
Thanks for this information !!!