I recommend Center for Complex Diseases, Dr David Kaufman (also sees patients remotely). Also listed on MEAction’s list of ME competent doctors. He has been super helpful for my Long Covid, after 4 years of struggle.
Absolutely--these supplements aren't cheap, especially when you start taking several. I had to really focus on those I wanted to give a good chance and stop chasing every single "miracle" product.
Oh, boy. The vagus nerve stimulator (VNS) is difficult to describe. First, I think it took every bit of 3 months before I noticed anything. Second, I found the effects to be slow and subtle as they incrementally increased. Its overall impact has been to help with baseline improvement--meaning, it's contributed to me crashing less and feeling like "fragile" (easily crashed). I also think it's a big contributor to increasing my heart rate variability, which is a good measure over time of the para- and sympathetic nervous system being in balance. If you're on Facebook, there's an excellent and informative group called "AVA A Vagus Adventure". Endless information and assistance. Plus, you can find coupon codes to many of the products out there!
I was on Famvir and was switched to Tenofovir. It, apparently, can be effective at dealing with EBV, which I’ve struggled to keep under control.
However, I’ve been told by two different ME specialists and an infectious disease doctor that when using antivirals for chronic conditions, it seems to be highly individualized. For some reason, there is no reliable go-to formula.
I’ve also been on Valtrex in the past. I think we just have to trial and error.
I recommend Center for Complex Diseases, Dr David Kaufman (also sees patients remotely). Also listed on MEAction’s list of ME competent doctors. He has been super helpful for my Long Covid, after 4 years of struggle.
Do you mind if I ask which specialist you waited 4 months to see? Looking to try a new one. Thanks!
Four Peaks Healthcare, Theresa Dowell
https://fourpeakshealthcare.com/
It’s unfortunate that these over-the-counter cost so much. How much does the vagus nerve stimulator help you? And what does it help?
Absolutely--these supplements aren't cheap, especially when you start taking several. I had to really focus on those I wanted to give a good chance and stop chasing every single "miracle" product.
Oh, boy. The vagus nerve stimulator (VNS) is difficult to describe. First, I think it took every bit of 3 months before I noticed anything. Second, I found the effects to be slow and subtle as they incrementally increased. Its overall impact has been to help with baseline improvement--meaning, it's contributed to me crashing less and feeling like "fragile" (easily crashed). I also think it's a big contributor to increasing my heart rate variability, which is a good measure over time of the para- and sympathetic nervous system being in balance. If you're on Facebook, there's an excellent and informative group called "AVA A Vagus Adventure". Endless information and assistance. Plus, you can find coupon codes to many of the products out there!
Thanks❣️
Hi! What antiviral did you switch to? Would be much appreciated! Thanks.
I was on Famvir and was switched to Tenofovir. It, apparently, can be effective at dealing with EBV, which I’ve struggled to keep under control.
However, I’ve been told by two different ME specialists and an infectious disease doctor that when using antivirals for chronic conditions, it seems to be highly individualized. For some reason, there is no reliable go-to formula.
I’ve also been on Valtrex in the past. I think we just have to trial and error.
Did you experience side effects on teno? My doctor rxd it for me, but I haven’t taken yet. Thank you!
I have not. I've been on-boarding a lot, so I've done one treatment at a time for no less than 2 weeks to make sure I can identify any side effects.